URU, The Right To Be, Inc. Presents
THE DEADLIEST DISEASE IN AMERICA
A documentary film by Crystal R. Emery
Virtual Film Screening Event
Making an Appeal for Equity in Access During a COVID-19 Pandemic
Followed by Live Conversations on Initiative for Change
Film Introduction by Broadcast Journalist Soledad O’Brien
Panel Moderator Dr. Shirley Malcom, American Association for the Advancement of Science
Panelists: Camara Jones, Thomas LaVeist, Ana Oliveira, Marc Morial and Crystal R. Emery
Intended to reduce systemic negligence creating barriers of access to health care, Producer/ Director NYWIFT Member Crystal R. Emery will livestream her documentary film, The Deadliest Disease in America on Thursday, May 7, 2020 at 7PM ET on Streamyard, YouTube and Facebook Live – with a special film introduction by Broadcast Journalist Soledad O’Brien. The livestream will be followed by an interactive forum by policymakers, activists and medical professionals, addressing the topic of developing a strategy for combating the systemic racism that persists in the fabric of American society, which has been recently been illuminated by the disproportionate effect of the COVID-19 pandemic on people of color.
“The multitude of inequities in our health care is an imbalance our society cannot sustain during these trying times,” explains filmmaker Crystal R. Emery.
The 55-minute film will be followed by a panel discussion with: Moderator Shirley Malcom,
Senior Advisor, American Association for the Advancement of Science, Crystal R. Emery, Founder and CEO of URU, The Right to Be, Inc., Dr. Camara Phyllis Jones, Evelyn Green Davis Fellow, Radcliffe Institute for Advanced Studies at Harvard University, Dr. Thomas A. LaVeist, Dean of the School of Public Health & Tropical Medicine, Tulane University, Marc Morial, President and CEO of the National Urban League, the nation’s largest historic civil rights and urban advocacy organization, and Dr. Ana Oliveira, President & CEO of New York Women’s Foundation.
The Deadliest Disease in America follows four individuals, including the filmmaker, whose personal stories add to the national debate on our country’s healthcare crisis. Emery shares her own experience as an African-American encountering racism while navigating the healthcare system. Emery, whose arms and legs are paralyzed as a result of Charcot-Marie-Tooth disease, a form of Muscular Dystrophy, hopes that sharing these stories will stimulate conversations that move individuals to action. The film also focuses on three organizations, from New England to Texas, whose innovative strategies help mitigate the crisis.
Dr. Forrester Lee, Associate Dean of the Yale Medical School says, “With an astonishing capacity to see, understand and represent truth, Crystal Emery confronts racism in our healthcare system. In producing the Deadliest Disease in America, she gives voice to events and stories that for too long have been ignored and devalued.”
“The ultimate goal of this film is to illuminate disparate treatment based on racial, economic and ethnic differences in order to help achieve a healthcare system that serves all Americans equally,” says Crystal R. Emery.
“Her film forces medical practitioners to consider how racism has infected the body of medical practice. We are invited to heal ourselves through contemplation, dialogue and action. This film is a brave and matchless work that will find a receptive audience everywhere.”
— Dr. Forrester Lee, MD., Yale School of Medicine
“…a daring and insightful film . . . challenges all of us to demand equal treatment of everyone in the American healthcare system.” – Filmmaker, Bill Duke
“Crystal Emery, the dynamic, determined, and passionate Founder and CEO of URU The Right to Be, Inc., is at the forefront of bringing new and innovative ideas to combat the inequities of systemic racism.”
– Victor Dzau, M.D., President of the U.S. National Academy of Medicine
Virtual Film Screening Event:
Via StreamYard, YouTube, Facebook Live
7:00PM ET- Introduction by Soledad O’Brien
7:10PM ET – Film Screening: Deadliest Disease in America
8:05PM ET – Panel discussion
Shirley Malcom, Ph.D (Moderator)— Senior Advisor, American Association for the Advancement of Science
Crystal R. Emery, Ph.D – Founder and CEO of URU, The Right to Be Inc.
Camara Jones, MD, MPH, Ph.D—Evelyn Green Davis Fellow, Radcliffe
Institute for Advanced Studies at Harvard University
Thomas LaVeist, Ph.D—Dean, School of Public Health &
Tropical Medicine at Tulane University
Marc Morial, JD—President and CEO of the National Urban League
Ana Oliveira, Ph.D—President and CEO of the New York Women’s Foundation
The Deadliest Disease in America is produced by URU, The Right to Be, Inc., a nonprofit organization that uses multimedia solutions at the intersection of the arts, humanities, science, and technology to move all stakeholders toward a more equitable and humane world.
For more information about The Deadliest Disease in America, please visit URU’s website at www.urutherighttobe.org.
Official Trailer: https://vimeo.com/173557614
To RSVP for the event, please register at Eventbrite
About Crystal R. Emery p.g.a.
Crystal R. Emery is a dynamic producer, author and filmmaker known for producing socially-conscious storytelling on a variety of platforms that celebrate the triumph of the human spirit, a cause close to her heart as a quadriplegic who works to ensure that physical limitations don’t define her potential. She is also the founder and CEO of URU The Right To Be, Inc., a non-profit content production company that tackles social issues via film, theater, publishing, educational media and other arts-based initiatives. She is a member of the Producers’ Guild of America, New York Women in Film and Television and an American Association for the Advancement of Science IF/THEN ambassador.
About URU THE RIGHT TO BE
The mission of URU is to foster communication and understanding among diverse people by utilizing, discovering and applying tangible multimedia solutions at the intersection of the arts, humanities, science and technology. Our goal is to move all stakeholders toward a more equitable and humane world.
Let’s welcome Sheherzad Raza Preisler to NYWIFT! She is a native New Yorker who attended undergrad at Columbia University, where she majored in Middle Eastern, South Asian, and African studies and followed the pre-medical track. After an identity crisis, Sheherzad fell in love with all things filmmaking and is now an MFA candidate at Brooklyn College’s Feirstein Graduate School of Cinema. Much of Sheherzad’s work deals with growing up Muslim in post-9/11 America. She spoke to us about her unusual path from pre-med to science writing to filmmaking, how storytelling is innate to her culture, and her post-graduation plans.READ MORE
Let’s give a warm NYWIFT welcome to new member Tavia Mapp-Deterville, the CEO and Founder of the TaviaMD (TMD) Agency! TMD, founded in 2005 and based in New York City, is a premier voice in the public relations industry, launching successful and creative campaigns for a diverse clientele of entertainment, music, fashion, and lifestyle professionals. Mapp-Deterville also founded The Future is Female, a 501(c)3 organization that empowers women entrepreneurs through networking and events. We spoke with her about her business – and got some great advice for media entrepreneurs and working moms!READ MORE
Welcome to NYWIFT, Samantha Alvarez, an independent documentary and narrative filmmaker born and raised in the Bronx with six years of camera operating and video editing experience. Alvarez started her career as a multidisciplinary teaching artist. She now works as a video freelancer and recently won the 2022 NYWIFT Outstanding Woman Content Creator at the Nova Frontier Film Festival for her short mixed media documentary, "In the Body." We sat down with her to discuss her latest film, her career, and her inspirations.READ MORE
The 2022 Tribeca premiere "Sansón and Me" traces a young immigrant’s path from coastal Mexico to a life sentence for murder in California. The harrowing tale does not unfold in a traditional documentary format, but instead uses evocative recreations – many of them featuring members of Sansón’s own family as actors – to explore the meaning of a life fragmented by poverty, borders, and incarceration. We spoke to producer Su Kim about the team’s unusual, wildly creative, and ultimately deeply powerful approach to sharing Sansón’s story.READ MORE